The Amyloidosis Alliance and a worldwide patients organisation have created an international day of awareness dedicated to this rare disease, with 18 participating countries throughout the world.

There are no unifying symptoms that are common to all forms of amyloidosis. It is a rare, complex and multifaceted disease.

Amyloidosis can affect several organs: the heart, the kidneys, the digestive system, the liver, and the peripheral nervous system. 10,000 patients worldwide are suffering from hereditary forms of the disease.

The different forms of amyloidosis are very different illnesses.
They do have one thing in common, though: they are caused by an abnormal build-up of proteins in the body, that meld into plates that clump together and affect some organs negatively – generally the heart, the kidneys and the peripheral nervous system.

Some forms are hereditary, while others are acquired.

Diagnostic delay is one of the major issues of the disease, as its effects are often irreversible and sometimes deadly.
Late diagnosis and treatment are less and less acceptable, as modern medicine can vastly improve the day-to-day lives of patients and their loved ones, as well as increase life expectancy.

Faster diagnosis and treatment will change and save lives.
The link that we are trying to build through World Amyloidosis Day will bring all those affected by the disease, directly and indirectly, together.

26.10.2025.